Thursday, November 10, 2011

In a bit of a quandary....

So, I know, I know.... It's been a long time since I posted here. But, people are still reading and leaving comments of thanks to my posts.

....Thank you for reading. I appreciate it.

I am in a bit of a quandary right now. So, I am turning to the blogging world for a little bit of advice.

For the past 2 years, my whole self has been off - it's been very hard to explain, but most of it centers around my periods. I am okay....up until ovulation (since, I am in fact, ovulating!). Once that hits, I am a totally different person: moody, combative, overwhelmed by noise (including from my boys), unable to concentrate, forgetful, disinterested, eating everything in sight....the list goes on. The 3 weeks or so before ovulation is fine - I exercise, eat right, lose weight. Then, ovulation hits and I am out of commission for 3 weeks.

....This is getting really O-L-D....

I spoke to Dr. D at my annual last year - I opted to go up to 15 mgs. Lexapro. That worked for about 2 months...then it's been downhill from there.

I went for my annual yesterday with Dr. D (in his new posh office closer to my work - farther from my home) and I told him what has been building up for 2 years now. He said, guess what:

Premenstrual Dysphoric Disorder (PMDD)

Great...just great. Another disorder to add to my growing list!


He said there are a few options, of which some I have already tried and did not work, like the Lexapro increase (and I WILL NOT allow myself to go to 20 mgs. and have it not work after 2 months again!). There is one option which he said would most likely work:

....a minipill.

**Thud** **Thud** **Thud**

What am I supposed to do here? I have the MTHFR gene mutations....which can lead to clotting, right? And, what are one of the risks of the pill? You guessed it....clotting.

What the hell do I do now?

I need to get my life back here. I am losing time with my family...the family I fought for. But, at the same time, I don't want to risk my life over possible medical complications (and, yes, we have a will in place).

...I know I need to talk more with Dr. D....which I will do next week. He explained that this would be a non-estrogen pill, so it a much lower risk for clotting. That makes me feel a little better. I go for my annual physical next week, so I will have time to talk with Dr. M about this too.

I am just so unsure what to do right now. None of the conventional treatments have worked thus far, not even knowing this is what I am dealing with. I could use some input from anyone else who is dealing with the MTHFR issues right now....



Lollipop Goldstein said...

I'd definitely start with your doctor's opinion, but then it comes down to your comfort level. I wouldn't be comfortable with the Pill in the future, but I also have additional clotting disorders beyond the MTHFR mutation. Is there another way to treat the PMDD beyond the pill? Another option beyond Lexapro?

Posting this in the LFCA on Sunday to get more eyes on it.

Joy said...

Sorry to hear this. I don't know what I wpuld do!!! Hugs to you, Tina!!

cheryllookingforward said...

I also have MTHFR and was at a loss when it came to birth control. My doctor put me on the mini-pill because of the blood clotting thing. So that's another doctor out there that agrees with your doctor!