"Hi, I was glad to find that you have Doctors that know what they are doing. I've had 4 miscarriages 3 had gone by before I was tested for MTHFR I have the double mutation c677t.I have no way of getting back to you on this since your comment did not leave me an e-mail address and I don't see a blog associated with your profile. So, I will go back and answer your questions here until I can get in touch with you.
We got treatment with my 4th pregnancy I was injecting Heparin,taking 81mg of asprin,prometrium and Folgard which is high does folic acid and B vitamins. My pregnancy only lasted a week or two longer then the others. I planned to lose pre pregnancy weight before we tried again and taking folgard 3 months prior to ttc. But Surprise I am pregnant just took the test this weekend my Specialist is on vacation and I am stressing out on getting my meds started. I noticed on your blog that you were tested for your homocysteine level. My Doctor told me there was no need to test it since I was taking the folgard and heparin. Maybe I should stress this again can you recommend a way I should word it so that I am not at the losing end of an argument. Thank you so much for posting your story it is great inspiration and I know how much pain it cause to get you to where you are today. God bless you and your family. -Rachel in California"
First, I wanted to say I am so sorry for your losses. As you can see from what I have written here, learning to accept things as they were for me was not easy - and I am sure they have not been easy for you either. I am not surprised you are scared now with this surprise PG - and I hope I can help you a bit here to get this one to term.
With a homozygous MTHFR gene mutation, I must say that you SHOULD be on higher doses of Folic Acid/B vitamins AT ALL TIMES, not just when TTC or PG. As you age, this is going to set you up for heart disease, blood clotting, etc. and the Folic Acid/B vitamins will help to prevent this. You should also look to be on a low-dose baby aspirin regimen. I have been on my Fabb Tablets/baby aspirin since 8/06 and have not stopped (although the baby aspirin will be temporarily halted for labor/delivery around 37 weeks).
Homocysteine levels ABSOLUTELY should be checked, regardless of what medications you are on. My MFM clinic has checked my homocysteine levels throughout this PG because they can naturally rise during PG - and, since I presented with elevated levels when this condition was first caught, they want to watch it to make sure it doesn't go up into the dangerous elevated area again. Anyone that says it should not be checked is full of crap.
Heparin will not control homocysteine levels - it prevents the blood clotting. Folgard (or similar meds - I am on Fabb Tablets), or Folic Acid, is what actually brings down the homocysteine levels. You should start back on this as soon as possible.
Please e-mail me with any other questions... I am hoping to get in touch with you to make sure you get the right care!
2 comments:
This is very disheartening. Even with the additional treatment, she still lost her child.
Thanks so very much for stopping by my blog and for your very helpful comment and referencing me back here.
I appreciate your suggestions about the hemotologist and finding a high risk practice (if/when I am pregnant again). I appreciate your offer of email and am so glad to see your belly pics and to read you are doing well!
Thank you again.
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